Sunday, October 26, 2008

I had this comment for my post about keeping warm while at home.

"I can't believe you. You are very lucky to be able to do what you can. Some of us fibromites as you call us do not have the luxury of not working. I get my self out of bed every weekday and go to work no matter what pain level or fibrofog level. If I didn't work, I wouldn't have a home, healthcare, or food. If you are going to hurt lying around the house in your toasty socks under a lapquilt, why don't you experience the same pain at a job. My job is very taxing for anyone with fibro, I teach full day Kindergarten in public school in a very low economic area.
Get over yourself. The rest of us are just a bad, if not worse."
Can someone pls explain to me what "get over yourself" means, in this context?  I can't quite understand what Martha wanted to say. 

Did she say I whine too much? I am sure I do - whine a lot. Where else can I whine if not on this blog? This is where I do my whining and crying.

While I do admire Martha's strength to work through all fogs and pain, I would not expect it from everyone. I am not sure what people mean by "fogs". The worst period for me was when I crossed roads and almost hit by car, just couldn't remember to turn the stove off, and could not copy down a series of 6-8 numbers (ie bank account) from one page to another. Walk to work? There were times I walked to the nearby store to get a carton of milk but forgot halfway why I was there, and where I was supposed to walk to. 

I dont believe that you CAN work because you NEED to work. I had been there. When you really can't it means you really can't. Insisting in doing so only put yourself in danger, and you may endanger others too. But I do believe, given the right treatment

Thanks for leaving comments in this blog, and I always look forward to receive your comments, especially if it is someone with fibromyalgia, or living with other chronic conditions.  However, some comments do puzzle me, and cause me to read it over and over again - what are they trying to say? Or perhaps should I suspect that they did not really read by blog? 


4 comments:

excentric said...

I can't believe Martha. You do not always have a choice. When I became ill, I had a job I loved, a nice life, was self-supporting. I had to quit my job because I couldn't remember things, like who I gave meds to and who still needed them, I would almost fall over in the car driving home because I did not have enough energy to keep upright. I literally cannot get out of bed some days. Not 'don't want to', but 'cannot get out of bed'. Everyone is different, everyone's illness affects them differently, and no one has the right to judge anyone else on how well they do or don't cope. If you want to comment on someone's blog, be helpful, courteous, empathetic if you can't be sympathetic. I think Martha just hit my angry spot. Sorry. *smile*

fmsra said...

Thanks excentric. You have said it very very well!

Sometimes I get annoyed; sometimes I feel a little hurt and misunderstood when I see such comments. But let me tell you, most of the time, I fell that this is a reminder to carry on blogging! That is why I am here in the first place. To debunk the mythical image of people like me!

excentric said...

Yay, you. Blogging is an excellent way to let people who don't walk in your shoes know what it is really like, rather than just reading about your (or any) illness. We are all different, and one's personal experience can be so valuable to others. If they are also ill, they can see that they are not alone in their struggle, if they are not ill, they can gain understanding of their friends who are. You are doing a good thing. Keep it up.

fmsra said...

You are absolutely right!

I can't say reading your blog always bring a smile to my face. Sometimes I feel the pain for you too! Like Ouch.. that is painful etc. But I can let you know that it always makes me feel like I am not alone. Sometimes I identify with the phase you are going through - "I had/have that too!". Whatever it is, I always feel that I am not a lone and there will be light at the end of the tunnel. See JOanne's blog! YOu would have never guessed that she has fibro too.